Being Normal

Every work day I wake up and go to work.  I don’t really think much about life and what is going on around me until I start to head home for the day.  Usually on my way home, I reflect back on the day and my actions.  I ask myself, how did I do today?  Did I have any brief manic episodes, or how did work, and the people around me, make me feel today?  This is usually when I ponder how I am handling my medication changes.

I’ve been on the Seroquel now for just over a month.  The mania has gotten to the point where I am settled and normal.  I’m not manic and I’m not depressed…I’m just…normal.  It’s an odd feeling really.  I’ve lost those moments of extreme elation coupled with strange eccentricities and I’ve evened out.  I don’t know what to do with myself now.

Not only gone are the manic cycles, but so are the depressive cycles.  Again, this is another strange feeling.  I used to wear my depression like it was a second skin; it was a way to protect myself from further damage.  Now it’s gone and I don’t know what to do.  I can’t cry anymore, I can’t feel sad anymore.  I’m…normal.

I keep using this word normal over and over again.  What is normal?  Normal to me is bland.  It’s a state of no feeling.  I don’t know if I’m happy or sad now.  What should I be?  Should I be happy the medication is working and no longer causing me to be bizarre around my friends?  Or should I be happy that the medication has finally taken away the relentless sadness that has been enveloping me for months, even years?

This is why people with mood cycling disorders do not continue their medication for long.  We miss the highs from the mania.  It’s like a drug or a sirens call to us.  We crave these feelings because that is when we feel our best.  We hate this… this… normal feeling.  We don’t want to be normal.  If we could remain manic the rest of our lives and not hurt ourselves, or the people around us, we would find a way.  But sadly, we cannot.  Being in a manic state, while fun and exciting, is potentially harmful to ourselves and those we care about.  While manic, we don’t think about the effects we have on ourselves or surroundings – it doesn’t matter.  What matters is right now and the good time we are having.

While I am glad that I am normal, I’m struggling to cope.  This is a new feeling for me.  I equate it to being on a roller coaster and then getting off.  You want to go again right away because it was fun, but then there was also that long wait in line that takes an hour.  We want the fun – we want to get back on and do it all over again – but we don’t want the wait that goes along with it so we move on and hope something else comes along that will capture our interest.

Bipolar Medication

It’s been a few weeks and I’m still manic.  My therapist really doesn’t know what to do with me now.  My psychiatrist started me on Latuda.  At first it was just 20mg for a few days, then 40mg for two weeks.  At the end of the two weeks, I increased my dosage to 80mg as instructed.  This caused severe problems that took me a few days to recognize.

The Saturday I increased my dosage, I had planned a trip to Tomoka Brewery with the girls.  A friend is visiting from North Carolina and she was joining us as well.  I started feeling nauseous and uneasy for some strange reason so I decided to drive myself.  The entire drive I felt restless and remained uneasy.  I couldn’t focus and I couldn’t sit still.  For a 90 minute drive, this was bad news.

The entire drive I noticed myself looking at the time every five minutes.  I felt like time had slowed down and I couldn’t make it move quickly enough.  Normally, I don’t mind long drives by myself.  I’ll put on my favorite music and enjoy the trip.  This time, I needed to desperately get out of the car.

I ended up stopping halfway to the brewery at a gas station in the middle of nowhere.  There were about ten people at the station and I probably could have taken all of their teeth and made two full sets.  I still think I heard banjos in the background too.  As I got a bottle of water and a quick snack, I made sure to not look any of these creatures in the eye for fear someone may think I have a purdy mouth.

I hit the road as quickly as I had stopped and started drinking the water.  This didn’t help calm the restlessness at all.  By the time I got to the brewery it was so much worse.  I felt like I wanted to cut my skin off and step outside of my body.  Now the agitation and need to just keep moving settled in.  I couldn’t make these feelings stop and I thought it was the mania.  At this point, I hadn’t realized that this was related to the new medication.

The next day a friend and I went to the Renaissance Festival in Tampa.  We stopped for breakfast before driving out and during I still felt restless.  Luckily for me my companion for the day tends to have a polarizing effect on me and stabilizes my mood.  It’s his energy that works in my favor.

At the Festival we had a good time looking at all the vendors.  One of which was the corset vendor.  I stopped to try on a corset and absolutely loved it!  I got cinched up in a beautiful corset that fit me perfectly.  Unfortunately, they wanted $180 for theirs and I’m not willing to pay that price.  I can find one very similar online for half that price.  As much as I fell in love with the corset and felt I looked damn hot in it, I let it go.

The morning was hot and steamy so we left early.  I spent some time with my friend and we eventually made our way to Gators Dockside for an early dinner.  After, I went home.  Thankfully the restlessness was there but not too bad throughout the day.  I still think my companion was the reason for all this.  I find it amazing how the energy one person puts off can affect another person so easily, especially when the person being affected is emotionally empathic to others in the near vicinity.

After I got home I started thinking more about the medication but couldn’t really find anything that would cause this new, strange feeling.  I again took another 80mg tablet and went to bed.  Monday morning I woke and went to work as normal.  I made my cup of coffee (I keep a Keurig at my desk) and drank it as normal.  Within just a few minutes of the caffeine hitting my blood stream I was wired and way more agitated than normal.  I felt like my insides were trying to jump out of body and I couldn’t get comfortable at all.

I started doing a little more research into Latuda and found this strange medical term pop up a few times – akathisia.  I read it in the prescription documentation but I figured it was some disease.  Once I started reading up on this medical term, I realized it is exactly what I’m feeling – inner restlessness.  Bingo!  I immediately called my psychiatrists office and was told to go back down to 40mg.  It’s now been a few days since and the akathisia has subsided for the most part but it is still present.  Tonight, I am not taking this medication.  When I speak to my psychiatrist next he will be giving me a whole new prescription because I am NOT taking Latuda again.  It was way too expensive and way too many side effects.

Now that has me thinking, do I really need bipolar meds?  Of course my therapist and psychiatrist will say yes, but I’ve been without medication for years.  I should be able to get through this without going back on medications again, right?  I hate being used as a science experiment.  There isn’t one particular drug that works for bipolar disorder and I’m constantly playing with the drugs I’m ingesting. 

I feel like a lab rat and I want to stop.  I know it’s best for me but to what end do I have to do this?  So we’ll find the right drug cocktail that will work for a while but when my brain chemistry changes the drugs will need to be modified all over again.  It’s frustrating.

Top it off, the medications end up making me feel numb.  I will eventually miss the swing of the highs since I won’t feel them anymore.  I won’t miss the depression but that’s what the medication is for, to even me out.  This is also another reason why many patients wind up off their medication because they start to feel numb. The highs are great and we start to miss that rush but once we realize it’s the medication putting the brakes on the roller coaster we stop the meds.  That’s why I stopped the medication the first time and opted for CBT (cognitive behavioral therapy, pervs!).  I learned my triggers and how to compensate for them for so long.  It’s just recently that I’ve needed a little extra help.

Why does my brain chemistry have to be so far off?  Why can’t I be normal?  No wait, I like being abnormal.  Normal is scary.  Normal is for the people who are bland.  I like having a little spice to my life.  I wake up wondering, is today going to be moody and depressed or is today going to be manic and crazy?  Not really each day but you get the point.

Ruined Friendship

One of the problems with having a mood cycling disorder is that there are times that I can cycle without any warning and it will be oblivious to me.  I usually don’t know what is happening until it is too late.  Then I have to go back and fix my mistakes once I  become self-aware again.

Unfortunately, I cycled hard today and I ruined a friendship that I fear I will never get back; a friendship that I have relied on to be there for me when I’ve needed him the most.  I cycled into a hypomanic phase, and while in this phase if I am not aware it is happening, a tiny problem the size of a grain of sand could send me over the cliff.  That is exactly what happened.  I became angry and obsessive over a simple request.  I couldn’t get out of my own head to realize what I was doing and it became a slippery slope.  When all was said and done, I lost one of my dearest friends.

I hate what I did.  I can’t take it back.  I so desperately want to take it back but it’s done.  I can never be forgiven, not only by him but by myself as well.  I was hateful and vengeful and was hurt so I wanted to hurt him back.  I succeeded. 

The problem with people that have a mood cycling disorder is that not everything our brains tell us is true.  It might feel like the truth, but it’s not.  I can read a statement and take it at face value but then let my brain analyze it for several minutes and the meaning of that statement has completely evolved.  My brain has transitioned something that means nothing into so much more that I need to protect myself from.  I can’t just take a step back and let it be what it is.  I have to over analyze everything.

Fear also becomes my brain’s self-defense mechanism.  Fear and anxiety subconsciously kick in to protect me which causes me to be paralyzed and sometimes make irrational decisions.  I can’t make a decision on anything that feels threatening or make changes that could potentially create huge conflict.  There is already too much change constantly happening within my brain that I can’t move forward or risk implosion.

What it basically comes down to is that there is a lot of muck in my brain that I have to deal with on a moment by moment basis; no, make that second by second.  I constantly have to consider what state of mind I am in and where I am in the cycle charts.  When I forget to be self-aware, problems like this arise.  When I get overwhelmed by changes and other factors in day-to-day life I can lose touch with where I am in the spectrum and lose touch with reality. 

I hope that I can salvage this friendship but I know it will never be the same.  I didn’t act with integrity and there is no excuse for my actions.  If I could jump in a Tardis and go back in time to stop myself from making this mistake I would.  Honestly, I’d go back several months and change my actions.  We would be on stronger footing today if I did.  Instead, I will go off to my corner and cry for a lost friendship.

Being Alone

The other day my childhood friend’s mom passed away suddenly.  She’s 1,000 miles away and I cannot be there for her.  She’s grieving and going through this very difficult time and all I want to do is to take her pain away.  But who’s going to take my pain away?

I know what grieving is like.  I’ve lost so many friends and family members in recent years I feel isolated even though I am surrounded by friends.  Recently I’ve lost a co-worker, Gerry, due to the flu virus and in November I lost one of my closest friends, Mickey.

Mickey was special to me.  He was older and would always tease me about my younger age, or really anything he could find to tease me about.  I loved him and I would do anything for him.

One day in November I took him to the VA to get a routine colonoscopy.  While waiting we sat and talked about our plans for the holidays.  This year we were going to spend them together.  For Thanksgiving he was going to cook a roast and Christmas he was going to make his homemade Italian gravy (red sauce).  I don’t have close family and I was looking forward to spending the holidays with him.

The procedure went well and we had dinner after.  I teased him about eating “old people’s dinner” at TooJay’s because we were eating at 4pm with the rest of the older people that liked to eat early.  A few days later when I hadn’t heard from him I went to his apartment.  All the doors were locked from the inside.  I knew there was trouble.  I called the police who called the fire department to open the door.  The firefighter broke the chain on the backdoor and the police officer entered.  I tried to follow but I was pushed back – hard – and told to go around front.  The officer came back out and looked at me.  No words needed to be said, I knew what happened.  Mickey was dead.

I broke down into hysterics.  I am so grateful for Christine and Shirley being there with me and tried their best to comfort me but none was to be had.  My friend was gone.  He died alone in bed of natural causes.  Mickey always took care of me so now was the time for me to take care of him.  He had no family and always made sure that myself and our good friend Brian were aware of his wishes.  It was a long night but I eventually got his body removed and taken to the funeral home.  Seeing him in a body bag was devastating to say the least.

It’s been a long road trying to deal with the grief of losing him.  Brian and I emptied his apartment of all his belongings and he’s handling the financials along with the estate.  I made it through the holidays but barely.

I am alone.  Sure, like I mentioned I have friends, a mother, two sisters and a grandfather, but I am alone.  Why?  My mother and sister have borderline personality disorder that makes it difficult to keep them in my life.  I choose to communicate with them as little as possible to protect myself.  It’s gotten to the point that when I speak to my mother on the off occasion I don’t have any familial feelings for her that a daughter should have for her mother.  My full sister lives with my mother and we just do not talk to one another.  It’s better that way because she cycles much worse than I do and gets angry at the drop of a hat.

For my friends, it’s challenging for them to understand the cycles of a person that suffers from bipolar disorder so to protect them I keep them at arms distance.  My half-sister lives in Missouri and has a family of her own.  I know she would be there for me whenever I need to talk but I don’t ever want to be a burden.  Not for her or my friends.  So I choose to isolate myself because it’s easier.

For as much as I isolate myself intentionally, I crave for someone to push through the walls that I put up around myself and make me feel worthy of love and affection.  I’m waiting for that one person that will see me for the person that I am, not be afraid and still want to form an intimate, loving relationship.  Instead, I find myself emotionally isolated, lonely and depressed often because I cannot form intimate relationships with people.

This isolation makes me an introvert and experience strong social anxiety.  So my life is essentially a catch-22.  I don’t want to feel as though I’m not supported by others, but the anxiety makes it harder to meet others, be social and develop friendships.  It’s a challenge that has no right answers because I have a social phobia, but I know the only way to cure this phobia is by finding social support from other people.  It makes me spiral into a deep depression sometimes and makes me feel even more lonely.  It also makes me the shy and anxious person that I am.

To deal with this anxiety, I pull away from others and be alone so that I can reduce stress.  When I do go out to spend time with others, I don’t enjoy myself because I fear social situations and the anxiety that can arise from it.  This anxiety creates negative and “black and white” thinking.  I internalize everything to the point that negative thoughts run wild in my head.

The problem with this thought process is that being alone is exactly the opposite of what I need.  There is no cure for social anxiety but distractions help.  Distractions help me to stop overthinking and attempt to live my life.  This is something I cannot do when I’m alone with my own thoughts.  I am trying as hard as I can to overcome the fear of being social.  I’m pushing myself to get out and join the community even if it causes me to shake in fear.  If you see me out somewhere, don’t hesitate to say hi to me.  I may not start the conversation and I may look like I don’t want to talk, but I will promise you that I crave for someone to say hi and talk to me.  Don’t let me run away.

Who Am I?

I have a form of bipolar disorder called cyclothymia.  It is a mood cycling disorder much like the classical bipolar disorder except that my mood cycles are much more acute than a normal bipolar mood cycle.  My cycles can last from hours to days, and can hit me at any given moment with no warning.  This is called rapid-cycling.  Before you assume, I don’t go from calm to bitchy in seconds.  Rapid mood cycling usually takes a few hours and sometimes longer to recognize. 

My brain works differently than most people.  I think in ways most people do not.  I have a crazy, vivid imagination that pops into my brain at random times and gives me inspiration for most aspects of my life.  It also makes me spout out random statements or questions without thinking about the impact on others first.  This I call “foot-in-mouth” disease.

Among a wide range of emotions, I tend to lean toward being an empathetic and understanding person for the most part.  I put others before myself even to the detriment of my own feelings.  I suffer in silence most days and I refuse to cry in front of people when I can help it.  I will love you more than I love myself.  I’m just generally screwed up.

I’m also not good with gray areas.  I need things in my life to be black and white.  When presented with an ambiguous situation I struggle with it and sometimes push away.  I believe in absolutes; everything is a yes or a no or right or wrong for me.  There is absolutely no in between.  It’s stressful since most of the world lives in the gray area of life; especially those I have relationships.

Dealing with ambiguity creates tension for me.  I am quick to make decisions, even when they are not the right decisions.  I don’t think about consequences.  I rarely stop and consider outcomes and sometimes this hurts the people in my life.  I don’t do it intentionally but when posed with a decision I make one with the knowledge I have at hand rather than do research.

These are just a few of the issues I am working with among others.  “I am who I am; no more, no less”*  I know I’m not alone but I often feel like I am.  I try to talk through these feelings but its draining and I don’t want to be a burden to others.  I have my off days and these are generally when I want to hide away in my cave and be alone, or be in the comforting arms of a loved one. 

I will disappoint you; I disappoint myself.  I have to remind myself daily that the sky isn’t falling and I need that reassurance from you too.  I need to be reminded to slow down and not make irrational decisions.  Overall, be supportive and talk to me.  When I cannot stand on my own two legs, be the quiet strength that I need because I’ll never ask for it.

*Terry Goodkind, Wizards First Rule