Being Normal

Every work day I wake up and go to work.  I don’t really think much about life and what is going on around me until I start to head home for the day.  Usually on my way home, I reflect back on the day and my actions.  I ask myself, how did I do today?  Did I have any brief manic episodes, or how did work, and the people around me, make me feel today?  This is usually when I ponder how I am handling my medication changes.

I’ve been on the Seroquel now for just over a month.  The mania has gotten to the point where I am settled and normal.  I’m not manic and I’m not depressed…I’m just…normal.  It’s an odd feeling really.  I’ve lost those moments of extreme elation coupled with strange eccentricities and I’ve evened out.  I don’t know what to do with myself now.

Not only gone are the manic cycles, but so are the depressive cycles.  Again, this is another strange feeling.  I used to wear my depression like it was a second skin; it was a way to protect myself from further damage.  Now it’s gone and I don’t know what to do.  I can’t cry anymore, I can’t feel sad anymore.  I’m…normal.

I keep using this word normal over and over again.  What is normal?  Normal to me is bland.  It’s a state of no feeling.  I don’t know if I’m happy or sad now.  What should I be?  Should I be happy the medication is working and no longer causing me to be bizarre around my friends?  Or should I be happy that the medication has finally taken away the relentless sadness that has been enveloping me for months, even years?

This is why people with mood cycling disorders do not continue their medication for long.  We miss the highs from the mania.  It’s like a drug or a sirens call to us.  We crave these feelings because that is when we feel our best.  We hate this… this… normal feeling.  We don’t want to be normal.  If we could remain manic the rest of our lives and not hurt ourselves, or the people around us, we would find a way.  But sadly, we cannot.  Being in a manic state, while fun and exciting, is potentially harmful to ourselves and those we care about.  While manic, we don’t think about the effects we have on ourselves or surroundings – it doesn’t matter.  What matters is right now and the good time we are having.

While I am glad that I am normal, I’m struggling to cope.  This is a new feeling for me.  I equate it to being on a roller coaster and then getting off.  You want to go again right away because it was fun, but then there was also that long wait in line that takes an hour.  We want the fun – we want to get back on and do it all over again – but we don’t want the wait that goes along with it so we move on and hope something else comes along that will capture our interest.

Being Manic

Most people don’t understand what it is like to live with a mood cycling disorder so let me give you a little taste of what the roller coaster we suffer from on a daily basis.  For months I’ve been depressed with feelings of isolation, grief, loneliness and complete despair.  It’s caused me to push away the people that love me the most and withdraw from the world around me.  It makes me see a delusional reality filled with distrust, anger and cynicism.

Recently the fear of losing an important relationship caused me to snap out of this depression streak.  Overnight I went from a moody, depressed, and miserable existence to one filled with happiness, hopefulness and the feeling of being giddy all the time.  It was like a light switch that was flipped in my brain.

My thoughts come rapidly like a freight train that is careening off course, or better multiple freight trains.  I have a tremendous amount of energy that I cannot contain.  My speech is rapid and my hands flail all over the place as I talk.  I don’t quite have grandiose thoughts but they are up there.  I act on impulse rather than thinking through my decisions in an analytical fashion and I don’t worry about the repercussions.  In other words, I feel like I am flying and I don’t want to come down.

As for chemically what is happening in my brain, I have an excess of serotonin and norepinephrine running free.  These two hormones are what creates the manic state in a person that has bipolar disorder.  The serotonin is necessary but there are not enough receptacles to attract the serotonin and therefore it produces the elated feelings.  This also increases the norepinephrine which results in the erratic behavior that I experienced along with the increased heart rate and blood pressure.

When a bipolar patient is experiencing the depressed side of the spectrum, the serotonin levels are very low and there are too many receptacles waiting for the brain to release more of this hormone.  The reduction of serotonin causes the negative feelings, the lack of enthusiasm and dreads the goes along with depression. 

While it is easy to discuss the chemical reaction that occurs in the brain, the resulting emotions are much more difficult to describe.  When I am manic like I am today I feel like I want to bounce off the walls.  I laugh easily and there is not enough stimulation in the world to keep my attention.  I want to run and jump and play and be happy.  I don’t want to think about anything that can ruin this high nor do I want to control it.  I just want to be free.

As I meander through this stage I am very much aware of what is happening to me.  It’s like I am a bystander watching my life careen out of control as if I’m having an out of body experience.  I’m watching myself from above with no care to stop myself.  This part of me that is floating above me just watches and waits for that next moment that is going to bring me crashing back to earth.  Eventually it will happen.  Something will hit me and reverse the chemical reaction in my brain to make me depressed again.  It’s just a matter of time.  So until then, I will enjoy this ride for all it’s worth.

Hypomania

I am still in a hypomanic state today.  It’s not as bad as yesterday, but it is still mania.  The mania I experienced yesterday was intense.  As I sat at my desk working I couldn’t focus all day on one task; my mind kept wandering all over the place like a runaway freight train.  I was giddy and child-like most of the day and I couldn’t keep from bouncing all over the place.  I would get up frequently to talk to a co-worker that joined me for the day and he recognized my giddiness too.  My speech was as rapid as my thoughts as we talked and he just laughed.

While being in this hypomanic state, the emotions I have had over losing my friendship is not quite as bad as it has been.  I don’t feel the need to cry and isolate myself at the moment. I’m more forward and sure of myself today.  It’s a good place to be but still not exactly healthy.  My mind is still circling around all the recent events and playing “armchair quarterback” with the lost friendship.  I have to stop myself almost every hour from reaching out to this person over and over again.  I know he needs his space and time but I want his attention – I want him to hear me out so desperately and understand where I was coming from.

I feel like I am at the peak of a roller coaster, enjoying the thrill and exhilaration of the unknown.  I’m going to make the best of my circumstances and enjoy where I am today.  I will not make rash decisions as this could be detrimental for me while I am in this state.

Love and Grief

Often there are moments just after my mind wakes but my body hasn’t fully begun to function that I lay in bed and ponder such things as why am I here and why am I the way I am.  These few moments in the morning give me a time to be introspective and contemplate the world around me.  I also take these few moments and think on more spiritual thoughts as well.  Sometimes these thoughts make me happy; more often than not these thoughts make me sad and emotional.

As I consider recent events in my life I have to ask myself why people gravitate toward one another.  What is the meaning of love and why do we look for it in every corner and every person?  Recently I’ve been re-examining the idea of love and relationships and what I need from another person.  It seems that no matter what happens, every relationship is going to end and hurt at some point.  Why do we continue to do this to ourselves?  Why do we inflict so much pain on each other?  Are we all serial masochists and don’t realize it?

Every relationship will eventually end.  That’s what my therapist taught me.  As harsh as it is, those were his exact words.  I was shocked and stunned by his frankness on the subject.  How can he say these things to me when I’m grieving the loss of so many people and relationships?  I had to stop and consider this theory, and as analytical as I am, I realize he’s right.  Every relationship we have with someone will end.  Whether it is by death of one person or because one person no longer wanted to be in the relationship, it will end.

It saddens me to realize how true these words are, especially for me.  Sometimes I think the loss that I’ve experienced is insurmountable and I cannot function.  I wonder how it is that I go on living my life day to day with this terrible feeling.  The grief that I carry around with me engulfs me on a daily basis.  It’s become my shelter, my shield, and my protector.  It keeps me from forming long-lasting bonds with people, and when I do push aside grief to let someone into my life, I end up ruining it in some way.  I don’t realize this is what I am doing until it is too late and the damage is done.  It just happens.

This morning grief and I had a conversation.  He reminded me that I am alone and that he will always be with me to share in my troubles and help me find the dark places in my soul.  I took comfort in knowing that grief will not leave me as he will continue to be there for me to help me detach when I attempt to let another person love me.  He will be there like a black knight to protect me from further injury to my soul and remind me that this relationship will destroy itself like all others and not to get attached.

I finally got out of bed and made my way into the kitchen.  I need that morning pleasure of coffee to comfort my soul.  I stand in the kitchen and water Shyla, my eastern lily that was given to me when my dog Shyla passed.  She’s been growing so big lately that I had to repot her into a bigger pot.  I take a few moments to think back to a happier time when I felt like I could move forward; a time I wasn’t so paralyzed.  I let the moment pass in fear the sadness will be overwhelming.  I curl up in bed with my morning yumminess and I grab for my pills, these pills that keep my heart rhythm from becoming out of whack, and I realize I’m missing one.  How long has it been since I’ve had my anti-depressant? 

As I sit in the dark sipping my coffee that is quickly turning cold, I think about why it is I take the anti-depressant.  Am I fooled as much as every other American in the belief that I can take a magic pill and it will suddenly make me happy again?  Maybe I should just stop taking it and let the depression engulf me.  It is after all where I find I am most comfortable.  My depression has a way of keeping people at arm’s length and maybe that is for the better.  It keeps me isolated and anti-social so that I don’t have to talk to people, nor do I want to talk to others.

My coffee is cold.  The air is cold.  My room is dark.  The world is silent.  My bed is comfortable.  I’ll just stay here today and let the world go on without me.

Ruined Friendship

One of the problems with having a mood cycling disorder is that there are times that I can cycle without any warning and it will be oblivious to me.  I usually don’t know what is happening until it is too late.  Then I have to go back and fix my mistakes once I  become self-aware again.

Unfortunately, I cycled hard today and I ruined a friendship that I fear I will never get back; a friendship that I have relied on to be there for me when I’ve needed him the most.  I cycled into a hypomanic phase, and while in this phase if I am not aware it is happening, a tiny problem the size of a grain of sand could send me over the cliff.  That is exactly what happened.  I became angry and obsessive over a simple request.  I couldn’t get out of my own head to realize what I was doing and it became a slippery slope.  When all was said and done, I lost one of my dearest friends.

I hate what I did.  I can’t take it back.  I so desperately want to take it back but it’s done.  I can never be forgiven, not only by him but by myself as well.  I was hateful and vengeful and was hurt so I wanted to hurt him back.  I succeeded. 

The problem with people that have a mood cycling disorder is that not everything our brains tell us is true.  It might feel like the truth, but it’s not.  I can read a statement and take it at face value but then let my brain analyze it for several minutes and the meaning of that statement has completely evolved.  My brain has transitioned something that means nothing into so much more that I need to protect myself from.  I can’t just take a step back and let it be what it is.  I have to over analyze everything.

Fear also becomes my brain’s self-defense mechanism.  Fear and anxiety subconsciously kick in to protect me which causes me to be paralyzed and sometimes make irrational decisions.  I can’t make a decision on anything that feels threatening or make changes that could potentially create huge conflict.  There is already too much change constantly happening within my brain that I can’t move forward or risk implosion.

What it basically comes down to is that there is a lot of muck in my brain that I have to deal with on a moment by moment basis; no, make that second by second.  I constantly have to consider what state of mind I am in and where I am in the cycle charts.  When I forget to be self-aware, problems like this arise.  When I get overwhelmed by changes and other factors in day-to-day life I can lose touch with where I am in the spectrum and lose touch with reality. 

I hope that I can salvage this friendship but I know it will never be the same.  I didn’t act with integrity and there is no excuse for my actions.  If I could jump in a Tardis and go back in time to stop myself from making this mistake I would.  Honestly, I’d go back several months and change my actions.  We would be on stronger footing today if I did.  Instead, I will go off to my corner and cry for a lost friendship.

Being Alone

The other day my childhood friend’s mom passed away suddenly.  She’s 1,000 miles away and I cannot be there for her.  She’s grieving and going through this very difficult time and all I want to do is to take her pain away.  But who’s going to take my pain away?

I know what grieving is like.  I’ve lost so many friends and family members in recent years I feel isolated even though I am surrounded by friends.  Recently I’ve lost a co-worker, Gerry, due to the flu virus and in November I lost one of my closest friends, Mickey.

Mickey was special to me.  He was older and would always tease me about my younger age, or really anything he could find to tease me about.  I loved him and I would do anything for him.

One day in November I took him to the VA to get a routine colonoscopy.  While waiting we sat and talked about our plans for the holidays.  This year we were going to spend them together.  For Thanksgiving he was going to cook a roast and Christmas he was going to make his homemade Italian gravy (red sauce).  I don’t have close family and I was looking forward to spending the holidays with him.

The procedure went well and we had dinner after.  I teased him about eating “old people’s dinner” at TooJay’s because we were eating at 4pm with the rest of the older people that liked to eat early.  A few days later when I hadn’t heard from him I went to his apartment.  All the doors were locked from the inside.  I knew there was trouble.  I called the police who called the fire department to open the door.  The firefighter broke the chain on the backdoor and the police officer entered.  I tried to follow but I was pushed back – hard – and told to go around front.  The officer came back out and looked at me.  No words needed to be said, I knew what happened.  Mickey was dead.

I broke down into hysterics.  I am so grateful for Christine and Shirley being there with me and tried their best to comfort me but none was to be had.  My friend was gone.  He died alone in bed of natural causes.  Mickey always took care of me so now was the time for me to take care of him.  He had no family and always made sure that myself and our good friend Brian were aware of his wishes.  It was a long night but I eventually got his body removed and taken to the funeral home.  Seeing him in a body bag was devastating to say the least.

It’s been a long road trying to deal with the grief of losing him.  Brian and I emptied his apartment of all his belongings and he’s handling the financials along with the estate.  I made it through the holidays but barely.

I am alone.  Sure, like I mentioned I have friends, a mother, two sisters and a grandfather, but I am alone.  Why?  My mother and sister have borderline personality disorder that makes it difficult to keep them in my life.  I choose to communicate with them as little as possible to protect myself.  It’s gotten to the point that when I speak to my mother on the off occasion I don’t have any familial feelings for her that a daughter should have for her mother.  My full sister lives with my mother and we just do not talk to one another.  It’s better that way because she cycles much worse than I do and gets angry at the drop of a hat.

For my friends, it’s challenging for them to understand the cycles of a person that suffers from bipolar disorder so to protect them I keep them at arms distance.  My half-sister lives in Missouri and has a family of her own.  I know she would be there for me whenever I need to talk but I don’t ever want to be a burden.  Not for her or my friends.  So I choose to isolate myself because it’s easier.

For as much as I isolate myself intentionally, I crave for someone to push through the walls that I put up around myself and make me feel worthy of love and affection.  I’m waiting for that one person that will see me for the person that I am, not be afraid and still want to form an intimate, loving relationship.  Instead, I find myself emotionally isolated, lonely and depressed often because I cannot form intimate relationships with people.

This isolation makes me an introvert and experience strong social anxiety.  So my life is essentially a catch-22.  I don’t want to feel as though I’m not supported by others, but the anxiety makes it harder to meet others, be social and develop friendships.  It’s a challenge that has no right answers because I have a social phobia, but I know the only way to cure this phobia is by finding social support from other people.  It makes me spiral into a deep depression sometimes and makes me feel even more lonely.  It also makes me the shy and anxious person that I am.

To deal with this anxiety, I pull away from others and be alone so that I can reduce stress.  When I do go out to spend time with others, I don’t enjoy myself because I fear social situations and the anxiety that can arise from it.  This anxiety creates negative and “black and white” thinking.  I internalize everything to the point that negative thoughts run wild in my head.

The problem with this thought process is that being alone is exactly the opposite of what I need.  There is no cure for social anxiety but distractions help.  Distractions help me to stop overthinking and attempt to live my life.  This is something I cannot do when I’m alone with my own thoughts.  I am trying as hard as I can to overcome the fear of being social.  I’m pushing myself to get out and join the community even if it causes me to shake in fear.  If you see me out somewhere, don’t hesitate to say hi to me.  I may not start the conversation and I may look like I don’t want to talk, but I will promise you that I crave for someone to say hi and talk to me.  Don’t let me run away.

Who Am I?

I have a form of bipolar disorder called cyclothymia.  It is a mood cycling disorder much like the classical bipolar disorder except that my mood cycles are much more acute than a normal bipolar mood cycle.  My cycles can last from hours to days, and can hit me at any given moment with no warning.  This is called rapid-cycling.  Before you assume, I don’t go from calm to bitchy in seconds.  Rapid mood cycling usually takes a few hours and sometimes longer to recognize. 

My brain works differently than most people.  I think in ways most people do not.  I have a crazy, vivid imagination that pops into my brain at random times and gives me inspiration for most aspects of my life.  It also makes me spout out random statements or questions without thinking about the impact on others first.  This I call “foot-in-mouth” disease.

Among a wide range of emotions, I tend to lean toward being an empathetic and understanding person for the most part.  I put others before myself even to the detriment of my own feelings.  I suffer in silence most days and I refuse to cry in front of people when I can help it.  I will love you more than I love myself.  I’m just generally screwed up.

I’m also not good with gray areas.  I need things in my life to be black and white.  When presented with an ambiguous situation I struggle with it and sometimes push away.  I believe in absolutes; everything is a yes or a no or right or wrong for me.  There is absolutely no in between.  It’s stressful since most of the world lives in the gray area of life; especially those I have relationships.

Dealing with ambiguity creates tension for me.  I am quick to make decisions, even when they are not the right decisions.  I don’t think about consequences.  I rarely stop and consider outcomes and sometimes this hurts the people in my life.  I don’t do it intentionally but when posed with a decision I make one with the knowledge I have at hand rather than do research.

These are just a few of the issues I am working with among others.  “I am who I am; no more, no less”*  I know I’m not alone but I often feel like I am.  I try to talk through these feelings but its draining and I don’t want to be a burden to others.  I have my off days and these are generally when I want to hide away in my cave and be alone, or be in the comforting arms of a loved one. 

I will disappoint you; I disappoint myself.  I have to remind myself daily that the sky isn’t falling and I need that reassurance from you too.  I need to be reminded to slow down and not make irrational decisions.  Overall, be supportive and talk to me.  When I cannot stand on my own two legs, be the quiet strength that I need because I’ll never ask for it.

*Terry Goodkind, Wizards First Rule